Nine Lessons 2020 Taught Us About DisabilityThe year 2020 taught us a lot about ourselves and overcoming adversaries. After the onset of COVID-19, many non-disabled people were faced...reactionscomments
Home IVsHome infusions (IVs) are something most of us with cystic fibrosis are accustomed to. It’s one of the best ways to receive...reactions3comments
How Is CF Mucus Different From Non-CF Mucus?When people without cystic fibrosis (CF) think of CF, they likely focus on the hallmark characteristic of the condition: mucus. It is...reactionscomments
Ways To Infuse IV Antibiotics At HomeStarting IV antibiotics for a CF exacerbation can be a real bummer! It's not always easy to put your life on hold...reactionscomments
How To Build A Healthy Relationship With Your DoctorA good relationship with your doctor is essential when living with cystic fibrosis. CF patients often report feeling dismissed when talking to...reactionscomments
Workplace Accommodations and Navigating Disability IssuesDepending on the nature of a person's chronic condition and how it impacts their daily life, they may or may not want...reactions1comment
Cleaning And Disinfecting Your Home For Cystic FibrosisThere has been a lot of talk about cleaning, disinfecting, and overall best hygiene practices this past year. For those living with...reactions2comments
Six Minor Ways Trikafta Has Significantly Changed My LifeTrikafta has changed the lives of many individuals and families in the CF community since it’s release. A lot of people with...reactionscomments
Glossary of Terms for Advance Care PlanningPerhaps you are thinking about situations where you may not be able to make decisions about your own healthcare. This might be...reactions1comment
The Sweat Test: Confirming Your Child's DiagnosisReceiving a phone call that your new child's newborn screening detected cystic fibrosis can be a frightening situation. Your doctor will probably...reactionscomments
Clearing The Fog: Advice For New CF ParentsWhether it is your first child or your fourth, a new baby brings physical, mental, and emotional exhaustion. Mothers are dealing with...reactions1comment
How Has CF Impacted Your Friendships?It's no secret that cystic fibrosis touches every area of our lives. Whether we are going to school, choosing colleges, entering the...reactionscomments
Finding Answers To Chronic Pain: CF And Rheumatoid ArthritisIn the "Searching for Answers to Chronic Pain," I detailed the frustrating journey of living with chronic pain since late puberty. After...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 2)It is still early days when looking at the long-lasting effects trauma can have on babies and parents in newborn intensive care...reactionscomments
Cystic Fibrosis and MasksI was recently scrolling through Instagram and a post caught my eye. It was made by someone with thousands of followers and...reactions1comment
What Is A Living Will?The word “will” can seem loaded when mentioned in casual conversation, and it might seem morbid to talk about or even unnecessary...reactionscomments
The Difficulty With CF Clinic NumbersEven though I have gone to roughly 140 or more cystic fibrosis clinics in my life so far, I still feel anxious...reactionscomments
MemoriesI’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had...reactionscomments
The Link Between CF and Ear InfectionsOtitis media, more commonly known as middle ear infections, is a prevalent infection that usually occurs in childhood. In fact, otitis media...reactionscomments
Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and...reactionscomments
